Random ramblings from the new normal.
The first lot of medication from the neurologist did not help at all. It just seemed to ramp things up to the extent that I contacted her at 9:30 on a Saturday evening to find out if we could stop. The new medication is much better. My husband is calmer, and making more sense, although we still have sessions where I am trying to guess what he is talking about, and then guess what he is trying to say about it.
We go on daily walks. Before the new medication this was challenging. He had three speeds. Slow, Stop and Stop-and-Argue, which can be nerve wracking when there is a car coming. This has improved, although his judgement is still affected. And he keeps wanting to drive again…
Shaving is more complicated than you might think. My husband is beardless for the first time in decades. (I cannot hang a picture straight, and this is worse.)
I can mow a lawn. Sort of. At least it’s shorter.
My son is not coping well. And he won’t hear of therapy, counselling or any version thereof.
My husband and I went for counselling – he does get frustrated, and there were some things I wanted to talk through as well. Unfortunately the counselor seems to have decided she knows what’s best for me. Go to the gym? It makes me exhausted just thinking about it. ‘Getting rid of negative energies’. Riiiiiight. I’ll stick to my knitting and tatting as sanity savers. (Her opinion of these is not high. Around the level of playing hopscotch and pat-a cake) Even if I am engaged in a game of thread chicken with the tatting that is probably going to end up with a dead chicken.
I have a relative who phones occasionally and asks brightly ‘And how are you coping?’ A lot of the time I’m bloody well not coping. But I can’t even begin to explain. I just give up and say equally brightly ‘We’re going along!’